Welcome to our fundraising page! Cece was diagnosed with Turner Syndrome when she was 3, and fortunately, aside from maintenance specialist appointments, daily growth hormone shots and some isolated scares that have thankfully balanced out, she is doing well thus far.
The aim of the Turner Syndrome Foundation (TSF) is not to seek a cure as this is a genetic condition, but, rather, funds raised will be put toward research efforts to improve care and generally benefit these girls and women who can experience a varied combination of numerous physical, educational and psychological challenges throughout their lifetimes. Advocacy is a huge piece of this organization's purpose, and working to inform doctors, educators and government officials as to the needs to change/establish policy and take steps forward out of ignorance, is key to helping girls and women with Turner Syndrome to be guaranteed whatever degree of support they need throughout their lives based on the manifestation of their condition.
Early diagnosis and comprehensive treatments over the lifespan will lead to a brighter and healthier future for all young girls and women with Turner Syndrome.
If you are interested and able, please click the 'Make a Donation' link on the upper left of this page to sponsor our efforts in meeting our fundraising goals. We are grateful for any and all support--if you cannot donate, please keep us honest in our preparation by asking us how our training is going:)
If you are interested in learning a bit more about Turner Syndrome, check out the links below:
|Rosemary Deery||5/8/2012||$25.00||Great dedication and team effort! Congratulations!|
|Marie Burton and sons||5/5/2012||$100.00|
|Matt and Lois Mruz||5/4/2012||$200.00|